This is a list of non-Embodied Labs informative links that you may find useful.
THE CLAY LAB
General End-of-Life Information
Medicare: Hospice & Respite Care
Information from Medicare about what is covered when a person receives
hospice care.
https://www.medicare.gov/coverage/hospice-and-respite-care.html
The National Institute of Health: What is End-of-Life Care?
Basic details about end-of-life options for families.
https://www.nia.nih.gov/health/what-end-life-care
Advanced Directives & Living Will Documents
MayoClinic.Org: Living Wills & Advanced Directives
Information and definitions of different living wills and advanced directives.
https://www.mayoclinic.org/healthy-lifestyle/consumer-health/indepth/livingwills/art-20046303
Books & Misc.
Being Mortal by Atul Gawande
Influential book by a practicing surgeon about living a “good life” all the way
until the end-of-life.
http://atulgawande.com/book/being-mortal/
“Gone From My Sight”: A Poem by Henry Van Dyke
Poem partially heard in module three of The Clay Lab.
https://allpoetry.com/Gone-From-My-Sight
THE DIMA LAB
Information about Lewy Body Dementia
Lewy Body Dementia Association
Information about LBD symptoms, research, resources, and support.
https://www.lbda.org/
National Institute on Aging: What is Lewy Body Dementia?
Information about LBD symptoms, research, resources, and support.
https://www.nia.nih.gov/health/what-lewy-body-dementia
Information about Parkinson’s Disease
Parkinson’s Foundation
Information about PD symptoms, research, resources, and support.
https://www.nia.nih.gov/health/parkinsons-disease
National Institute on Aging: What is Parkinson’s Disease?
Information about PD symptoms, research, resources, and support.
https://parkinson.org/understanding-parkinsons
Information about Elder Care
Eldercare Locator
Information about local resources for older adults.
https://eldercare.acl.gov/Public/Index.aspx
PBS: Resource Guide to Caring for your Parents
Resources from national and state organizations; advice on how to talk about
care decisions and transitions.
https://www.pbs.org/wgbh/caringforyourparents/index.html
Information about Care Transitions
Agingcare.com
Website with information about many aspects of aging, including care
transitions.
https://www.agingcare.com/articles/help-senior-adjust-after-move-toindependent-living-168514.htm
Other Information
Family Caregiver Alliance
Influential book by a practicing surgeon about living a “good life” all the way
until the end-of-life.
https://www.caregiver.org/home-away-home-relocating-your-parents
Dementia Action Alliance
Resources, advocacy, and information for people living with dementia
https://daanow.org/
THE EDEN LAB
Resources for Organizations Exploring Better Inclusivity Practices
SAGECare
SAGECare offers LGBT aging training, national credentialing, and consulting
to service providers to foster a more welcoming community for LGBT older
adults.
www.sageusa.care
Alzheimer's Associate & SAGECare Issues Brief: LGBT & Dementia
A joint special issue from the Alzheimer's Association and SAGECare on
how having dementia impacts LGBT people uniquely.
https://www.alz.org/media/documents/lgbt-dementia-issues-brief.pdf
National Resource Center on LGBT Aging
The National Resource Center on LGBT Aging is the country's first and
only technical assistance resource center aimed at improving the quality of
services and supports offered to lesbian, gay, bisexual and/or transgender
older adults.
www.lgbtagingcenter.org/
LGBTQ Aging: American Society on Aging (ASA)
Factual information that supports your informed policymaking strategy and in
establishing best practices and models that “do the right thing” for LGBTQ
communities nationwide.
https://www.asaging.org/education/
Healthcare Equality Index (HEI)
The national LGBTQ benchmarking tool that evaluates healthcare facilities;
policies and practices related to the equity and inclusion of their LGBTQ
patients, visitors and employees.
https://www.hrc.org/hei
Long-Term Care Equality Index (LEI)
From the Human Rights Campaign, who created the Healthcare Equality
Index, in partnership with SAGECare, an index that provides a scorecard
for promoting equitable and inclusive care for lesbian, gay, bisexual and
transgender older people in long-term care communities.
www.thelei.org
GLAAD Lesbian, Gay, Bisexual, Queer Glossary of Terms
https://www.glaad.org/reference/lgbtq
GLAAD Transgender Glossary of Terms
https://www.glaad.org/reference/transgender
GenSilent
A documentary about LGBT older adults who are going back into the closet
to survive their interactions with healthcare systems, home care, and
continuing care organizations.
https://www.theclowdergroup.com/gensilent
Before You Know It
Three gay seniors navigate the adventures, challenges and surprises of life
and love in their golden years.
https://www.imdb.com/title/tt2473762/
THE ELDER SAFETY AND WELL-BEING LAB
Caregiver Burnout
Relaxation/meditation
www.calm.com
National (US) resources for caregivers
https://www.aarp.org/caregiving/local/info-2019/national-resources-for-caregivers.html
Intro to essential oils
https://alzjourney.com/2015/05/24/caring-for-the-caregiver-essential-oils/
Intervention and De-escalation
Conflict resolution strategies
https://openclassrooms.com/en/courses/2348776-resolve-conflicts-at-work/6174223-learn-to-manage-your-emotions
Trauma-Informed Care
Strategies for coping with PTSD flashbacks
https://www.verywellmind.com/coping-with-flashbacks-2797574
Implementing Trauma-Informed Care Handbook
https://www.leadingage.org/sites/default/files/RFA%20Guidebook.pdf
THE FRANK LAB
Social Isolation Resources
Framework for Isolation in Adults over 50
From the AARP Foundation, a comprehensive overview of the issues related
to social isolation in older adults, and a look which issues must be addressed
to provide effective solutions.
https://www.aarp.org/content/dam/aarp/aarp_foundation/2012_PDFs/AARPFoundation-Isolation-Framework-Report.pdf
CDC Information and Resources
Information about social isolation, the populations more specifically at risk,
and links/resources that can help if you or your loved one are socially
isolated.
https://www.cdc.gov/aging/publications/features/lonely-older-adults.html